Invariably, we will have an upcoming doctor's appointment and I will think, "WOW, Samuel feels so heavy. He must have gained at least a pound since we last weighed him!" But when the red numbers pop up on the scale, I'm painfully disappointed. 20 lbs. 20 lbs. 20 lbs. He's been stuck there for three months now. I'm fairly certain that the lack of weight gain is due to his mobility. It may also be due to the fact that we are not making much progress with table food. He continues to drink 20 oz of Pediasure a day (yes, from a bottle) and several jars of the non-lumpy stage 3 purees.
What table food WILL he eat? Carbs. Carbs. Cheese. Oh....and did I mention carbs? On the menu: lil' crunchies, cookies, bread, cheese, Baby MumMums, Cheetos, and any other crunchy junk food.
Samuel continues to see Speech, Occupational, and Physical therapies several times a week. After two months of beginning therapy, he had become comfortable enough to do more than cry at each session. Recently, he's reverted back to his old ways of un-cooperation. I'm not sure what's going on....but hopefully we'll figure it out soon so that they can begin making progress once more.
I feel a bit torn about therapy anyway. Many of you micro preemie mommas out there realize the importance of having in-home therapy during the winter months when we need to keep our babies isolated. Very few clinics in our area offer in-home services. Part of me wants to pull him out of therapy and keep him home....away from all of the other germy kids who attend the same clinic. But the other part of me knows that this clinic comes highly recommended. I know that Samuel NEEDS the therapy. I also know that taking him to therapy during this winter might provide some relief from the cabin fever that defined my life last winter. Any thoughts?
Developmental therapy did their yearly re-eval last month (he was 16 months old and 12 months adjusted age.) Here are the results of two different tests:
E-Lap Test HELP Test
Gross Motor = 15 mo. Gross Motor = 14 mo.
Fine Motor = 12 mo. Fine Motor = 12 mo.
Cognitive = 12 mo. Cognition = 12 mo.
Language = 12 mo. Communication = 12 mo.
Self-Help = 15 mo. Adaptive = 16 mo.
Social Emotional = 12 mo. Personal/Social = 12 mo.
So as you can see, he's pretty much on track for his adjusted age (where he SHOULD be if he had been born on his due date.) I'm fairly happy with that, but I can't help but wonder at the doctor's statement that preemies tend to 'catch up' by the age of two. Really? I just don't see that happening...
The regimen of daily medicines that Samuel takes has changed slightly. His Miralax is a must....but the other meds are slowly becoming less necessary. We've decreased the use of his Flovent inhaler (much to the dismay of his pulmonlogist) and hopefully we will have him off of it by the time cold and flu season ends. I just don't like the side-effects associated with it. His Prevacid also seems to be unnecessary as we haven't heard him reflux in ages and spitting-up is a distant memory. The plan is to discontinue it in the spring as well.
On the whole, things are going very well. He's really growing up!!! We're really praying that his eating will improve over the next couple of months - more table food, less bottles, and weight gain!
(All photos taken by Kim Lowery Photography. Aren't they GREAT?! Go check out her site. I'm POSITIVE that you will love what you see.)