Who knew we could have a day where the monitors weren't going off every 4 minutes! What a wonderful day! Samuel's vitals have been even more stable than they were yesterday. He has come down a lot on the ventilator settings - his oxygen is at 30%. His lung x-ray did not show a lot of difference though.....hopefully we will see some improvement tomorrow. Overall, I am very thankful for the day we had. :)
The doctors will increase his feeds on Thursday. Samuel's belly looks swollen again tonight - but maybe that's how it's going to be now that he is eating? Not sure....but it's nerve-wrecking after having dealt with all of this before. I've been trying my best to make the nursing staff as paranoid as I am....just to be sure they are on their toes. hehe.
Samuel's chest x-ray is around 4am tomorrow and his head ultrasound will be sometime in the morning. As always...please pray for good results. I'm so thankful that we've been told not to worry about the little brain bleeds that Samuel has had previously. We'd love to hear tomorrow that the doctors don't see any signs of bleeds at all.
The nurse tonight is very young and a little green..... It makes me nervous that someone younger than me is taking care of my baby. But then again, I have to laugh at myself because I'm sure that's what all of the parents of my students think about me!
I have been feeling discouraged this last week and I think God sent me a particular nurse just to instill some hope. The night nurse that Samuel had last night was encouraging me to hope for the best for Samuel and to expect great things from him (no matter if he comes out of all of this with a disability or not.) Since the beginning of my pregnancy, Michael and I have prayed specifically for a 'healthy, normal, beautiful baby." We continue to pray those words even now - specifically in regards to how Samuel will be when he is released from the hospital.
You keep em on their toes... Trust me you aren't being paranoid you're being a mom. The age doesn't matter you are a wonderful teacher to Kohana and I trust you whole heartedly with her, so trust yourself it's the mama bear coming out to fight for him since he can't fight 4 himself. You are doing a great job. We won't stop praying till he is safe at home where he belongs.
ReplyDeleteHi Sarah, I ditto Sheryl. You hope above all hope. It's God that makes the final decision. He chose you and Michael for a reason to be Samuel's mom and dad...And you both are doing a GREAT job! We continue in our prayers.
ReplyDeletePraying with you for good test results today. Consistent in hope, Presistent in prayer. Hang on to the words that build you up let go of the ones that don`t.
ReplyDeleteSarah, this morning when I was praying...I ask God for the beyound the beyound...It is a Beth Moore thing she said at the confernce we went to this last fall...I told the Lord you know what I ask can for and you know Samuels needs and if it is greater Lord then my prayer please do the beyound the beyound, I love him and you that much and He loves you even more so...so I say IT IS DONE THEN...Huh...
ReplyDeleteDon't let them talk you into no hope. I know a story that I plan to text you later. I have permission from this friend to tell you about it. She was given no hope there either. Keep your head up.
ReplyDeleteThank goodness that our hope comes from the Lord and not from the nurses or other people!!! You mentioned that you and Michael have been praying for a healthy, normal, beautiful baby. I can tell you that you DO have a beautiful baby....who hass a beautiful mommy!!!
ReplyDeleteYay for a great day! We continue to pray with you and hope for you and your little family. You fit perfectly together and before I even read your post today we prayed on the way to school those exact words that you and Michael have been praying.
ReplyDeleteI am so thankful for the nurse God sent you, I am praying for more of that for you, especially on the days/nights Michael can't be there.
Hi Sarah. My daughter, Holly Morrison, led me to your blog. I've been reading it everyday and am praying for Samuel, the doctors, and for you and your husband's strength. I want to encourage you with this little story: our former neighbors had a baby girl who was born just as early as Samuel. She weighed about 1 pound. She never had any issues while growing up and she'll turn 20 this July! She is also a student at Texas A & M....quite the selective school. I hope this brightens your day in some way!
ReplyDeleteSarah,
ReplyDeleteIt is good to read your blogs and see where you and Samuel are at each day. I wrote something up for you the day we had the tree but was not here to give it before the tree left. I spoke to you about Samuel in the Bible. Hannah is very close to my heart becuase I have been struggling with infertility for four years now. When Hannah cried out to the Lord in anguish after many years of not being able to have children the Lord answered her and gave her Samuel. She immediately committed Samuel to the Lord and said that he would serve the Lord in the temple. She kept Samuel at home for only three or four years, until he was weaned and then she took him to serve at Shiloh, the temple of the Lord. It must have been extremeley difficult for her to release Samuel after waiting so long for him to be born and not having any promises of future children. Yet, Hannah released him to Lord and he annointed the first kings of Israel. He served the Lord in power all the days of his life. I learned from Hannah that we can not always hold on to the blessing the Lord gives us with a closed fist, but we have to release them, even when there is so much pain in the offering.
Praying continually for you both,
Kristen
Sweet Sarah, I am so glad to hear that Samuel is having more good days...everyday is a step closer to going home. I know of so many people that were given poor prognosis by their doctors and it turned out wonderfully. The doctors have to err on the side of caution, but our God is greater than all their scientific knowledge. Baby boy is already a miracle and a testimony to God's power, and I don't think He's going to stop using him or your family. You are all a living testimony. Keep looking up honey, God's got some great things in store for you!!!
ReplyDeletePslams 8:1-5 was the pslam I prayed for Samuel tonight.
ReplyDeleteI just opened up to the pslams and that was the page I opened up to. Every night I have been praying a different one and it is whatever one I open up to. I thought tonight I would share it with you. I loved the part where it said " you have taught children and infants to tell of your strength and silencing your enemies". I know one day Samuel will tell of his strength his mother had, the strength of prayer and the strength that God has to change any life. Still praying.
ReplyDeleteIt was so good to see you today. I'm also so thrilled that you've finally got to hold him. Keep up your spirits. Love you.
ReplyDeleteSarah,
ReplyDeleteI love you and am praying for your whole family, especially Samuel. I just wanted to let you know that I know a 6 year old boy that was born prematurely and given the diagnosis Chronic Lung Disease. However, he has no signs whatsoever of lung disease now. His mom told me that he was weaned off the ventilator (as Samuel is going through this same process) and had an inhaler until he was three years old. She says that they haven't had any signs at all of lung disease in the last three years.
I hope that this information can ease some of your anxiety regarding Samuel's lungs. I am sure the not knowing is extremely difficult...But you and I both know that Samuel is in God's hands. The same God who created a vast, amazing universe and knows the number of hairs on Samuel's head.
I will continue to pray!
Sarah,
ReplyDeleteI have been following your blog and praying for Samuel and for you and your husband. God is good and loves you and your family and wants only the best. Samuel is perfect and just as God made him. You are so blessed to have such a sweet little one. He will bring you many years of joy and laughter and tears.
Stay strong in the Lord. Know others are following your situation and praying for your family.
Bev Luck